I will sing to the LORD,
Because He has dealt bountifully with me.
OK, you're going to have to hang in with me for a minute because what I'm going to say isn't going to seem rational. Here it is: Poppy's situation is a wonderful blessing. I know, I know, that's crazy. I'm supposed to say, "this is a blessing in disguise," not "this is a blessing." I don't want to call it a disguise, though, and I'll try to break this apart for you.
As well as I understand the adage, "a blessing in disguise" refers to finding something of value somewhere unexpected or receiving something good because of something not-so-good. One weak example might be fretting over and looking for a lost Lego piece and stumbling upon a $20 bill in the process. Or maybe being delayed in getting home because of a car wreck instead of being in your house when a storm destroys it. I think that the keyword is probably surprise; it's about expectations.
Now, to Poppy. For me to call her situation "a blessing in disguise," I'd be placing the focus on circumstances revolving around her instead of simply on her. While I have been greatly blessed because she has Trisomy 18, I think those are secondary blessings. The primary blessing, the real object of value in all of this, is our fragile baby.
Greater than the lessons from Poppy's disease is my daughter herself. Poppy is a child and children are a gift from God. A child's sickly condition does not make her less of a gift. The very fact that God has allowed me to be her father is so amazing. I may never see her personality develop to its finished state, but I have no doubt that she would be every bit as wonderful as her mother and sister are.
Call me stubborn, but this is why I won't say "a blessing in disguise." Jesus loves Poppy exactly as she is and not because of how she can bless me or others or because she has particular physical needs. Her value is not in how she can be used or in her fragility, but in that she was made in God's image for His glory. Yeah, I'm going to hurt and losing her will be terrible and excruciatingly painful, but isn't God bigger than my anxiety and my fear?
So, I'm singing that Psalm with David. God has blessed me greatly and perhaps the greatest blessing in my life is my family, of which Poppy is an integral part. When I think of her, I refuse to make Trisomy 18 the focus. Instead, I choose to fix my heart on my precious and wonderful daughter.